Music for Megan & Family Fest

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Megan Grace Sheridan (March 2010)

Megan Grace Sheridan is our niece who is living with mitochondrial disease (complex 1). The text below has been directly copied from www.meganshope.org.

Megan Grace was born on August 3, 2003. She was diagnosed with Mitochondrial Disease (complex 1) on December 2, 2004, at the age of 16 months. This disease affects those diagnosed very differently. Megan’s disease specifically has caused her to have significant developmental delay, dyspraxia, gastrointestinal problems, severe gastro-esophageal reflux, slow growth, sensory processing disorder, heat intolerance, speech and feeding difficulties. Megan has a continuous drip through a g-tube for all of her nutrition because she is unable to eat.

Megan so far is coping with her disabilities through the help of many specialists and therapists. She is responding to the supplements and progressing in a good way, however the doctors can not give us any idea of what the future holds. For now, there are no proven treatments for mitochondrial disease. There is no cure.

What is Mitochondrial Disease?

Problems associated with this disease are caused by defective mitochondria – the parts of the cell that generate energy. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person is severely compromised.

Diseases of the mitochondria appear to cause most damage to the cells of the brain, heart, liver, skeletal muscles, kidney, and endocrine and respiratory systems. These diseases are considered progressive, although the path of the progression is unknown.

4th Annual Music for Megan

This year, Music for Megan will have FREE admission!!  Yes, you heard that correctly!  It’s FREE to attend this super fun, family fest!  There will be jump houses, face painting, pony rides, climbing wall, food and MORE!  Plus there will be a silent auction which My Hello Designs, Freddy & Petunia and many more will be a part of!  The event will be on September 25, 2010 in Alpharetta, Georgia at Wills Park Equestrian Center.

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Help spread the word about this event as well as build awareness for mitochondrial disease.  You can become a fan on facebook and suggest the page to your friends by clicking on the “Suggest to Friends” link below the logo in the upper left corner.  Even if you are not in the Atlanta area and you cannot attend this event in person, please encourage others to join the fanpage and share with their networks.  I’m sure you are personally connected with someone in Atlanta or someone you are connected to is connected to someone.  And the chain reaction will take place.  The more that attend this event, the more successful it will be to raise money and support UMDF.  You can make a difference and help build awareness for a disease that needs a cure.  And it’s literally as easy as “liking” a facebook fanpage and suggesting it to others.  Links are below.

For more information about Mitochondrial Disease visit: www.UMDF.org
For more information about Megan Grace Sheridan visit her carepage at: www.carepages.com/megansheridan
For more information about Music for Megan visit: www.musicformegan.org
Become a facebook fan of the Atlanta Chapter of UMDF here.
Become a facebook fan of Music for Megan here.

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Comments

  1. What a beautiful girl, and how great that you’re supporting her and others like her.

  2. Hi I’m stopping by from the Mom Loop and am following you through Google friend connect.

    I enjoyed reading your blog.

    Brenda

  3. Hello! Stopping by from MomLoop today! Best wishes for a successful event for your niece and increasing awareness about the disease.

    • Typical Suburban Family says:

      Love the one serving pies on your blog!! I absolutely cannot wait to try them!! What a fabulous idea! PS – I’m your newest GFC follower.

  4. This sounds like a wonderful event. Wishing the best for your niece and family.

    {stopping by from The Mom Loop}

  5. p.s. I’m dropping by from Mom Loop, and follow you on Facebook (Michael), Twitter (adaddyblog) and GoogleFriendConnect (adaddyblog). Have a great weekend!

    • Typical Suburban Family says:

      Not sure if I mentioned it on Friday, but I also stopped by your blog from Mom Loop. I visit your blog often and subscribed awhile ago via GFC and liked you on facebook 🙂

  6. What a sweet picture of her. So sad to hear of her challenges. I have friends and family in north central GA. Just tweeted:

    Free and for a great cause. Are you in Georgia? You must go to the “Music for Megan & Family Fest” http://goo.gl/fb/4tvLp @myhellodesigns

    • Typical Suburban Family says:

      Thanks for tweeting that! I really appreciate it. If you want to tweet again later this week as the event gets closer, that would be awesome.

  7. I will pass this on to my sister who lives in Alpharetta. Stopping from Mom Loop. Stop by and join the Friday Follow.

    • Typical Suburban Family says:

      Thanks so much for passing this information along! I love what a small world it is that you have a sister in Alpharetta!! I hope she will be able to make it to the event. It is always so much fun. And this year, it’s FREE!! How great is that?!

Trackbacks

  1. […] a fun (hot) day!  And this weekend we have Music for Megan & Family Fun Fest on the agenda.  If you are in the Atlanta area or know others that are, please encourage them to […]

  2. […] This post was mentioned on Twitter by A Daddy Blog, My Hello Designs. My Hello Designs said: Music for Megan & Family Fest http://goo.gl/fb/4tvLp […]

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